Tonight is the best that Trent has slept since the accident. I think he just couldn't fight sleep anymore. That sleep does seem to come with a cost for him though, but hopefully he'll get some relief when we go talk to someone tomorrow about the after effects of the accident. If you are one who likes to pray for specifics rest, real rest is at the top of the list.
His arm is doing really well. He's battling blisters from a sunburn on his arm after a walk with Gavin yesterday, which is indicative of a battle that in fighting - his inability to sit still. His hand swells to twice its size daily. Because of who he is Trent is having a hard time balancing doing too much and doing too little. Add that to the prayers list as well. His skin flap is doing great, on a happier note! He had all removable sutures removed Friday, which is a great sign. He is also no longer on any IV antibiotics. He'll have the picc line for a little longer but all is good there too. We'll see the ortho guys very soon. I know he's looking forward to having the external fixture removed and I'm looking forward to the same for selfish reason - I fear for my life on occasion and spend a lot of time ducking and dodging his sudden arm movements. Alternatively, I caught Gavin preparing to hang from it yesterday.
The kids seems to be doing well. They're all so tough its hard to tell what they really think. I will tell you they do love all of the visitor, and of course the food.
Work is something that is on the radar as a concern. I'm still on maternity leabe but have used up all of my full time pay and have moved into the halftime pay portion of my leave, which I am very grateful for. I have heard that my school district wants to know how they can help, which is awesome. In supposed to meet with them this week to see where I stand and what they can do - prayer list item #3.
As far as cheffing is concerned it seems to be on the backburner for awhile - pun partially intended. We just don't know and that is incredibly difficult for my husband. He loves to work, he is a great provider and he LOVES to cook.
A wise person told me yesterday that things will get easier before they get harder. That seems to be the trend and I'm going to hold on to that as long as possible.
Thank you so much for the continued thoughts and prayers. Thank you for spreading our story, Trent's story. Its comforting to know that people know for some reason. I guess because we know we're not alone. Synovial Sarcoma accounts for only 5% of all cancers so if you come across a trial or a bit of information worth looking into please share it with us. If you have anything you'd like to say please share that with us too if you can. Kind words go a long way.
Happy Fall 😌🍁🌲
#STUPIDCANCER #mothers #GP6
My family's honest cancer super-adventure.
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